Privacy Policy:

What is The Preemie Paradox?

We are a group of people coming from the NICU or neonatal intensive care unit. We do not claim to fix medically or psychologically repair anyone professionally. We use our own stories and commentary from others who have been in conversation with us. Studies conducted by research institutions and universities are open to the public. The Preemie Paradox uses these scientific study findings to talk about research in the NICU and parenting. Our intentions are to make a place NICU parents and those around them to come to get information they feel they need and a community of supportive people in our volunteer support forum.  The Preemie Paradox owns its social media sites and the website www.preemieparadox.com where the administrators of the social media sites and website are controlled by the members of The Preemie Paradox.  

What personal data we collect and why we collect it?

Comments:  

When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.

Media:

If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website. Here is the link to a norton security article to help you remove data from your photos if you do so choose. https://us.norton.com/internetsecurity-how-to-how-to-remove-gps-and-other-metadata-locations-from-photos.html All media from the preemie paradox page is considered a copyright from the image creator so please do not copy any photos from the preemie paradox website.

Contact forms:

The Preemie Paradox uses the Thrive Themes page builder and Thrive Themes forms to contact our audience to special opt in content and connection for the building up of our community. The Preemie Paradox does not and will not sell or willingly give others our list of emails and contact info. We only use the information we feel necessary to keep in contact with our audience and community members. The Preemie Paradox tries to use GDPR compliant opt-in forms with links to our privacy policy to explain this very issue with how we use our users data.  

Cookies:  

If you leave a comment on The Preemie Paradox website you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select "Remember Me", your login will persist for two weeks. If you log out of your account, the login cookies will be removed. If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Embedded content from other websites: 

​Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website. The Embedded content we at The Preemie Paradox link for our use does not mean that we fully support the website or group we link to, it merely means we agree that the information we link to was at the time we linked to the embedded link, accurate and necessary to the authority beyond The Preemie Paradox to answer on it own. We at The Preemie Paradox try our best to check out the websites we link to but we have no control over the direction and content of the sites we link to. In the case of a future development that negatively effects the audience of The Preemie Paradox, we will try to advise and correct the direction of bad information to another embedded site we feel better represents us or answer in a way that best completes the information by which the embedded information was linked to in the first place. 

Analytics

Who we share your data with?

We of The Preemie Paradox do not and will not share personal information with any group. All opt-in information is GDPR compliant and volunterry in nature. We do not feel it is nessary to any group to share willingly the expressed opinions to outside groups or organizations outside The Preemie Paradox.  

How long we retain your data?

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue. For users that register on our website, we also store their personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

What rights you have over your data?

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service. Those users that pass through are sent an email verification to be a part of the forum groups. The subscriber can decide if you want to be a apart of the forum or not from the email.

Your contact information

The Preemie Paradox needs some way to get in contact with those who contact us or other means of communication with a specific member of our community. We must have something to use for contact. We use a subscriber based system in our forum and an email for our contact us section. We only use contact information for communication and opt-in specials or other special use scenarios that a user may want and therefore agree to have notification sent to them with prior consent of notification. 

Additional information

How we protect your data? ​​

We of The Preemie Paradox are deeply concerned about keeping user information safe on our site so we are always looking to better secure our data and personal information of our community. Cyber security is always evolving and new methods of hacking are a daily threat.  We will not disclose our exact method of protection here due to the public access of this privacy policy but we do have measures we believe will be sufficient to stopping hackers and cyber security threats. Disclaimer: If a person decides they are afraid of their information getting out due to a data breech or hacker entrance to The Preemie Paradox website or social media sites, that the person should not become a user of the sites managed by The Preemie Paradox. 

What data breach procedures we have in place?

In the event that we have a data breech or hacked site. The Preemie Paradox will use the provided email users give us to send a message to our users that a data breech was made and what we need our members to do about getting back into the www.preemieparadox.com site. We cannot completely guarantee the spread of a hackers intent nor can we do much in the clean up of personal information gathered by a hacker. This is why only basic user information is gathered by The Preemie Paradox. Using only basic names and emails means your registration and login information isn't that interesting to hack the www.preemieparadox.com site over. The payment gateways are third party groups who have many layers of security over the payment system and The Preemie Paradox only uses third party sites for the payment process. We have no control over third party data breech procedures, only to alert our members if the third party sites get hacked in the process of the hand off from our www.preemieparadox site to the payment gateway.  

What third parties we receive data from?

The Preemie Paradox will use a variety of third party sites for payment gateways and email support and sending emails. We do not receive data from other sites other than analytical sites like Google analytics. If we do use such outside information in the future we will update the privacy policy to reflect the updated information.

 What automated decision making and/or profiling we do with user data?

The Preemie Paradox uses a tag based system of automation to send users a dedicated email to register their information into the database of the preemie paradox forum. This automation is only used to forward the consensual email to the expressed user for the purpose of getting their login credentials into the preemie paradox forum. other automation is only used for GDPR consented opt-in information that is solely used for bringing a user to a specific page on the www.preemieparadox.com site or a payment gateway checkout page.